{July 4, 2o1o} iNdePeNdeNce dAy!

This year we traveled to WI to spend the 4th with family!  We had a huge BBQ and Jymani was able to laugh and play with all his siblings in "his" pool at Grandma & Grandpa's House.  He was like a fish and spent almost the whole weekend in the pool!  He even got a sun tan!!!  It was a great feeling to see him playing outside and really fitting in with the other kids!  We are working so hard on obtaining a cooling vest so Jymani can play outside on a regular basis and not be stuck in the A/C all summer.

 This is the first time Jymani has ever been in the pool without hanging on to or being held by someone!  He swam around in his little tube and was being such a very big boy!  There was nothing separating him from having the time of his life this weekend!  He just swam to his little heart's content!!

TO INFINITY AND BEYOND!!!!

JYMANI HAS A NEW LOVE...IT IS TOY STORY!!!  HIS DADDY TOOK HIM AND HIS SIBLINGS TO SEE PART 3 ON TUESDAY THIS WEEK!  HE SAID HE LOVED IT...AND WHEN HE LEFT THE MOVIE THEATER HE THREW UP THE DEUCES AND YELLED. "PEACE, I'M OUT!"  GOTTA LOVE THIS KID....WITH EVERYTHING HE HAS BEEN THROUGH HE HAS SO MUCH CHARACTER!!!

FINALLY CHUCK E CHEESE!!!!

JYMANI HAS BEEN WANTING TO GO TO CHUCK E CHEESE SINCE THE FALL AND WITH THE FLU SEASON THAT JUST WAS NOT A POSSIBILITY!   SO WE GOT THE OKAY FROM HIS PEDIATRICIAN THIS PAST MONTH THAT JYMANI IS NO LONGER IMMUNE SUPPRESSED...HE WAS EVEN ABLE TO HAVE HIS SHOTS FOR KINDERGARTEN!!!  SO TO CHUCK E CHEESE WE WENT... JUNE 9, 2010!  IT WAS QUITE AN ADVENTURE AS JYMANI DIDN'T UNDERSTAND THAT HE COULD NOT RUN AWAY FROM US.  BUT HE WAS ABLE TO EXPERIENCE A LITTLE TIME THERE AND THERE HAVE FUN PLAYING ALL THE GAMES...JUST BEING ABLE TO BE A LITTLE BOY AGAIN!!!  WITH HIS TICKETS HE BOUGHT A CHUCK E CHEESE SOCCER BALL.......HE WAS SO HAPPY!!!

2 seizures in May......

Jymani had two very typical seizures in May.  He is being followed by a new Neurologist at Gillette in St Paul, MN.  We are hoping we can switch medication as we just found out one of his seizure medications lowers the ability to sweat.....thus causing Jymani to overheat...which generally brings on a seizure. Unfortunately, his Neurologist is more concerned about treating Jymani's behaviors and we will work on changing seizure meds once we have the outbursts and inability to control himself better under control.  In the mean time, I have started a Seizure binder to start tracking Jymani's seizures and hopefully pinpointing why he keeps having them and what (if anything) I can do to stop them from coming on!!

Projects @ School!!

Jymani brought his first project home from school and he was so proud of what he had made.  His VERY OWN binoculars!!!!!  I am so proud of him!!

{ApRil 27 2o1o} Buddy Goes to School!!

Jymani is now attending Early Childhood at Rondo in St Paul.  His teachers are great with him and he seems to really enjoy going!  Unfortunately, this will be short lived unless we can get a cooling vest for him as the weather plays a factor in weather he attends school or not, because of his heat intolerance/seizures.

{mAy 2Nd 2o1o} A beautiful Spring day at the MN Zoo!!

We were able to take Jymani on a family trip to the Zoo!  Thank you to our daughter Jyacia who received enough free tickets from her school for all of us to go!!  It was an absolutely gorgeous day and the weather was perfect for our little man to enjoy the entire day!!  He loved all the animals (especially the monkeys)!!!  He got some great exercise while we were there and he was not afraid of any of the animals!!  It was an amazing day!!  I am so thankful.......

Forever our Hero!!

THESE HORRIBLE SEIZURES.......

Jymani started school this week and he was only able to attend one day because he woke up this morning with a cough and runny nose.  We aren't sure of it is allergies, but we are not about to take the risk.  By afternoon he appeared to be feeling fine, all besides a draining nose.  Tonight Jymani and I decided to go outside and play football and he was really having a great time.  After awhile we sat down in the garage and had a snicker ice cream bar, so he could cool down and relax a bit before daddy started tossing the ball with him.  The kids came out to join us and moments later I heard Mikayla saying, "Buddy are you okay?"  Right then we knew something was wrong...Cortez ran to his side and I turned him towards me.  He was blue in the lips and purple in the face.  We tried talking him through it, we always feel like this helps in some way.  He tried talking to us but his words were jumbled.  He took a breath and then he started going into another one!!  Cortez grabbed him and held him and asked him to breath...Mikayla ran for the diastat.  He then starting coming out of this one.....seconds later he was right into another one!!  This all happened in a matter of about a minute and a half.  I was about to call 911 and then he came out of it with a deep breath and signs of great exhaustion.  He said, "Mommy, I'm tired"  He is now sleeping in my bed...It has been an hour since the seizure.  This is the postictal period.  He could sleep for hours........PLEASE LORD....END THESE SEIZURES....