Visiting family in Wisconsin.........

THE BOYS!!!!!!!!

JYMANI LOVES HIS FAMILY!!!!

My future Packer players!

Valley Scare 2009

Jymani had a great time at Valley Scare in Shakopee, MN. Another great gift from The Make a Wish Foundation and Give Kids the World!!!

OCTOBER 2 2009

Jymani had his medi-port removed today! The surgery went very well and Jymani made quite the impression on his surgeon and nurses! He received an award and a courage bear with a medal!

Jymani doing the "Harry"!

Jymani absolutely loves Hip Hop Harry. It has become yet another obsession in our home. He is so cute when he watches it and he is learning many things from it.... Including...DOING THE HARRY!!!

It's been a good summer....

Although Jymani has had a few break thru seizures overall he has been doing well! We have been luck enough to have a "not so hot" summer which has helped! Today Jymani had another seizure and we recently went up to 90mgs of Topamax, due to the last seizure, so I will be calling his neurologist in the morning to see if we need to increase again. I just wish we could get the seizures under control, it seems that the OMS is in remission,yet the seizures continue to give us so much stress!!!

Appointment at St Mary's, Seizure on the way home and then a package from HIP HOP HARRY when he woke up!!

Appointment Day

Today Jymani had another appointment in Rochester at St Mary's Hospital with the Mayo Clinic's Psychiatry and Psychology dept. Today was Jymani's first meeting with this new doctor! We had a pretty good first meeting and Jymani tried really hard to be on his best behavior! Dr. Koplin has decided to have a trial period of decreasing the Tenex (which he takes for behavior)to a half tab for 2 weeks. If we don't notice a significant change in his behavior we may very well just discontinue the med all together as it may not be helping anyway. Next week Jymani has another Neuro/Psych Evaluation and another sleep test as well. We are hoping to find some answers and get some relief for all of us when it comes to Jymani's behaviors. On the way home Jymani had a seizure in the car and it gave us all a scare. We pulled over until the seizure subsided and I immediately put a call into Jymani's Neurologist. (Still awaiting a response.) Jymani slept the rest of the way home, which is very normal after a seizure. He might sleep for a few hours, but we will keep a very close eye on him.
On another note, Jymani has mail waiting for him when he gets up he will see that his package from Hip Hop Harry has arrived!! He will be so happy!! (It is the t-shirt and one of the DVD's he wants, he definitely deserves it today!!)
Thanks for checking in!!