ANOTHER SEIZURE................. :(

After 6 months of being seizure free Jymani had another seizure tonight.  This is so frustrating and it makes me wonder if he is indeed having them at school when they tell me he has moments of of just "being in a zone".  Just this past week the nurse called saying he just seemed "out of it", but she didn't think it was a seizure.  I am really starting to worry about this.  We don't see the Neurologist until April.  Looks like I will be making an appointment with his Pediatrician in the morning.  Keep Buddy in your prayers....every night.  Thank You!

MY VALENTiNE!!!

Jymani celebrated his 1st classroom Valentine's Day Party, with his kindergarten class at Maxfield Learning Center!  He of course is my Valentine every day of the year, but this Valentine's Day I was willing to share him with his classmates and teachers!!  On Thursday, Jymani is going in for his 1st IVIG Infusion since 2008.  We all have our fingers crossed that this will help Jymani again.  Recently Dr. Burke at the Masonic Cancer Center has joined the team of doctors caring for Jymani.  We are all optimistic and although we know there is not a cure, we hope to help calm the storm.............WE LOVE YOU JYMANI!!!!!!!!!!!!

Jymani had a great Christmas!!

We spent Christmas in WI. Jymani had a great time with all our family and he received early birthday presents too!  Here is is enjoying his new robe and Toy Story Mr. Potato head!!

Awards at School!!

Jymani has been learning a lot at school. This is his 1st award he received in November for his performance.  We are so proud of him!

Medication changes.....

Jymani has been taking "Methylin" (Ridilyn) for his behaviors, but it is short acting and the rebound period has posed as more of a problem than without the medication.  Yesterday we met with his pediatrician again and we have switched to the patch, which releases a small dose over a period of 9 hours.  Today is our first day using the patch and I hope we find that it is effective.  We started at 10mg, which is significantly less than he was receiving in the pill form. (He was at 20 mg 3x/day).  Jymani will also see his Neurologist again to determine weaning off the Topamax.  Jymani also will see a new Oncologist/Hemotologist to determine continued treatment for his OMS.  It is very possible that the behaviors are due to the OMS and not ADHD or both.  We shall soon find out!  Please continue to keep Jymani in your prayers as he continues his battle with OMS & Epilepsy. Thank You!!

Jymani helped make his first SNOWMAN!!!!!!!!!

Today was the first snow day of the winter season! Winter is officially here and what better way to kick it off than by building an amazing snowman?!?!!?!?! Jymani had a blast!! (......and so did the rest of us!!!)

Jymani lost his 2nd tOOth!!!!

Here is Jymani with his BIG brother Tajai and friend James!!! Jymani lost his second tooth on THURSDAY, NOV.11th!!! 

Jymani's 1st Field Trip!

Today Jymani went to the Apple Orchard with his class!  Daddy went along for some fun with our little Buddy and his classmates and teachers!  Jymani said he had so much fun and he wants to go again!  Jymani came home with pumpkins and apples!  He was able to feed the animals and go on a hayride!  Daddy said that Jymani was really well behaved! I am so proud of him and I want to send a special thanks to Ms. Monroe and Mrs Valdez for taking such good care of my baby boy while he is at school!!!

Buddie & Buddy

Our neighbor Buddie loved to come over and say hello to our "Buddy" Jymani.  He thought it was so cool that Jymani's nickname was the same as his real name!  Buddie past away September 24 and he will greatly be missed!  So Buddie this post is for you! This is Buddie taking "Buddy" on a little ride.............