JYMANI FINALLY MET HIS OLDEST BROTHER DEKESHION!

WE HAVE HAD AN AMAZING MONTH! A LOT MORE UPS THAN DOWNS TO SAY THE LEAST!  THE BEST THING THAT HAPPENED THIS MONTH IS JYMANI GOT TO FINALLY MEET HIS OLDEST BROTHER DEKESHION!  HE SPENT HIS ENTIRE SPRING BREAK (PLUS SOME) WITH US  IN WI AND HERE IN MN.  JYMANI WAS SO HAPPY TO HAVE HIM HERE AND SO WAS THE REST OF THE FAMILY!  IN THE TOP PICTURE, KEKE IS GETTING JYMANI OFF THE BUS AND JYMANI IS GIVING HIM A RUN FOR HIS MONEY! LOL!! IN THE PICTURE BELOW JYMANI AND KEKE ARE SPENDING QUALITY TIME PLAYING THE PS3 TOGETHER!

JYMANI ALSO HAD A NEW APPOINTMENT WITH YET ANOTHER HEM/ONC DOCTOR, WHO HAS INFORMED US THAT THERE JUST MAY NOT BE ANYTHING ELSE THEY CAN DO AS FAR AS JYMANI'S OMS GOES.  WE MAY HAVE FINALLY HIT THE WALL, WHERE WE HAVE ALREADY TRIED ALL THERE IS KNOWN.  OF COURSE I KNEW THERE WAS A POSSIBILITY I WOULD GET THIS NEWS......I GUESS I REALLY JUST NEVER EXPECTED THE DAY WOULD COME.  THERE ARE STILL CONFERENCES BEING HELD AND I WAS TOLD THAT AS SOON AS THERE IS ANYTHING NEW TO TRY SHE WILL CALL ME RIGHT AWAY.  JYMANI ALSO HAD A SEIZURE ON MARCH 24TH WHILE PLAYING BASKETBALL OUTSIDE WITH HIS BROTHER........SO SAD.  HE HAD TO COME RIGHT IN AND HE ENDED UP SLEEPING THE REST OF THE NIGHT AWAY. MY POOR BABY..............

Jymani wants to be a Fire Fighter when he grows up.........

For the 1st time ever, Jymani told me what he wants to be when he grows up.  I never asked, he just randomly said to me, "Mommy, I wanna be a firefighter when I grow up."  Seriously, a moment I will never forget.  Five and a half years ago Jymani lost his ability to walk, talk, sit, stand, crawl and eat.  The progress was slow and the battle excruciating, but he eventually regained these abilities.  Doctors couldn't promise me he would ever lead a "normal" life.  The brain damage was irreversible.  About 2 years ago Jymani started talking again in 2-3 word sentences, thanks to a lot of speech therapy.  A year ago he was up to 3-4 word sentences.  And now today, to tell me what he wants to be when he grows up.......man my heart is smiling!!

Jymani's 1st Laker Game 1/29/2012

Jymani had a great time at the Laker/Timberwolves game.  Daddy is turning him into a Lakers fan!! LOL

JANUARY 2012

Jymani's 7th Birthday Party!

This year was Jymani's first friend party!!! It was so exciting for us!  Jymani did really well and he loved having his friends, Sam, Shawn and Shawon over for a fun party!!  On his actual birthday we went as a family to see the new Chipmunks Movie "Chipwrecked" with McDonalds to follow.....so Jymani really had a great time turning 7!!

DECEMBER 2011

Hanging out with Grandpa is always a good time!!

WE ALL LOVE YOU SO MUCH BUDDY!!!!

Christmas 2011

Jymani had a fabulous Christmas!! He received so many presents and was able to give the gifts he bought for everyone.  He really understood how special the holiday was this year.

Time sure flies!!!

WOW.......I can't believe how much time has lapsed since my last post.  Not too much has happened beside the fact that Jymani's seizures are still not that well controlled.  His EEG was abnormal as we all knew it would be.  Instead of calling me to help me understand the report his Neurologist mailed me the report and upped and left!  Now I am stuck trying to find another Neurologist to hop on board someone who can hopefully find his/her way through the mountains of records Jymani has.  It is so frustrating and part of me wants to just move back to WI so he can go back to Milwaukee and his team of docs there.  I really love his Pediatrician, she is absolutely on board with all his care and helps refer me us to doctors that he needs to see, but these other "specialty" doctors just don't see to "get it" 100 percent or understand the full magnitude of his disorder.  Its so frustrating, I feel as if I do more talking and explaining than they do!  So the New Year for me will begin with finding new doctors to start the process over again.  We are looking for a new Neurologist and Hemo/Oncologist to step aboard and hopefully take this "Bull" by the Horns.  I am hopeful, but if something doesn't change soon a move back to WI is inevitable.  Happy Holidays to all of you!!