OMS relapse......

Jymani was admitted to Childrens Hospital in Milwaukee on Wednesday, March 25 for numerous reasons, most importantly an OMS relapse. He had been sick since Sunday and he was continuing to run a high fever and have major conjestion issues along with ataxia and seizures on a daily basis. Many scans were conducted during Jymani's stay, CT, EEG, MRI and a Bone Scan, fearing a return of a Neuroblastoma. Thankfully, the scans were all clean! Doctors say everything was too much for Jymani's system especially since he is currently going through chemotherapy. He was put on 3 weeks of antibiotics and we have to come back in 2 weeks for a follow-up. Jymani is not showing the eye movements he displayed last week and doesn't appear to be too unsteady anymore. He is "acting" more "baby like" and whining that he is sick, but he seems to get a little better as the days pass. He is still quite stuffy, but the fever has subsided. We have opted to hold off on chemotherapy until he is well as requested by his neurologist. Thank you for everyone's well wishes and visits during this time!

Another Scare!

Last night Jymani could not move his left arm! We rushed him to the ER and approximately 2 hours later he was using it as if nothing had happened! We spoke to his neurologist today because he had another seizure and they think he had temporary paralysis on his left side after having a seizure that we may have missed last night. Being that Jymani has "focal" (partial) seizures, this is not uncommon, but still makes his seizures more serious. Now we have to schedule another MRI. Jymani slept for 3 hours after his seizure today and he woke up coughing & sneezing with a 103.9 temp. I took him right in to his pediatrician and Milwaukee docs faxed over blood work orders. They were unable to get ample amount of blood after 4 tries and sent us home to come back in the morning. This is why I so much hate when he sees the docs here, I wish we lived closer to Milwaukee! Everything is up in the air right now, I have no idea why he has the fever, and this is so not good now that he is currently going thru chemo.

Wedding Day for Mommy & Daddy!

Jymani was part of a magical day today as his daddy and I were married! He had so much fun dancing to the music! He was a very good boy and entertained many of our family and friends! He is so loved by everybody!!

Cytoxan (AGAIN!)

Today Jymani started Chemotherapy again today! It is the first infusion of three this time around. We got to Children's around 8 am and started the day off with labs. Then we made our way down to the Oncology Clinic where everyone always greets Jymani with such love! Auntie Denise and DeNaeza came to visit him! He was so happy! During the infusion, Dr. Jogal ordered Jymani to have Pentamadine, which is an antibiotic inhalant, because Jymani is allergic to Sulfa (and Bactrim is usually given as a precautionary measure during Chemo). Jymani absolutely hates it as the mask has to stay on his face and it has a horrible taste! He screamed and cried the entire time, he kept telling me he was a good boy and he wanted to be done. It just breaks my heart! So we got through it and then Jymani's breathing became very labored! His O2 dropped to 75%, he was wheezing and coughing and just could not seem to catch his breath. The nurse called Dr. Jogal and he immediately ordered a breathing treatment. Well, they ended up needing to give him three! They were contemplating having him admitted, but Dr. Jogal gave him a steroid through his IV and sent us home with an inhaler and steroids. I swear, never a dull moment with Jymani, he just loves to keep us on our toes! We have never had this type of reaction from the Pentamadine, I stood by his side the entire day and watched his O2 stat like a hawk! As if there isn't already enough to worry about, but we got through the day and left the hospital around 6pm. Jymani's voice is still raspy and he sounds a little gurgly. He is sleeping now, I bought him a bed for my room so I can keep a close eye on him, especially during these next 3 months of Chemo!