Tuesday, July 31, 2012
Jymani had a great playtime with his Big Brother Dekeshion, this weekend. After having another seizure on Thursday, Jymani was forced to spend more time inside, but Saturday and Sunday we filled the pool and let our "Buddy" get in some great playtime. It was so nice to have his brother jump right into the pool and wrestle around with his baby brother.
Tuesday, July 24, 2012
Tuesday, May 1, 2012
Today Jymani had an appointment with his Pediatrician for ear pain and just to have a good look over him, since doing the referral to Milwaukee. Come to find out his left ear was so infected that the Tympanic Membrane ruptured and the fluid/infection was just sitting in his ear. This is the 2nd time this has happened with his ears, its like he doesn't express the pain during the infection until after the membrane ruptures. Poor Buddy, I am thinking this may be the reason he has been so off the last few weeks. I'm sure it doesn't explain it all, since clearly the Adderall has never really been a complete fix on his behaviors, but I think it for sure plays a part. let's just hope the antibiotic for his ear and the Risperidone will help and we will soon start to see positive changes in his behavior. (Hopefully, when he sees his Psych doctor on May 7th, we will get the Risperidone prescribed and started!)
Monday, April 30, 2012
Wednesday, April 18, 2012
Jymani has really been struggling to keep his "cool" at home and now his behaviors are coming out in school. Yesterday, he had to leave school because he was being a danger to himself and others. I was told that it would be "unsafe" for him to ride the bus home. The thing that gets me is they talked to me earlier in the afternoon and told me that there was nothing they needed me to do. I told them I could come and get him and they said he was better and he was back in class with his peers. Really, I should have just went with my first mind and picked him up. His school has this "Solution Room" that I think hurts more than it helps. It is an empty concrete "jail cell". Jymani spent most of the afternoon in there yesterday and he was a complete monster all the way home and all night. We both ended up crying ourselves to sleep. I know Jymani's behaviors lashing out are a sure tail sign of an OMS relapse. I son't know what to do anymore. The doctors have all but turned us away. Except his pediatrician, God Bless her heart, she really shows so much interest in Jymani's case, but there is nothing else any of the specialists will do. I know he needs treatment, but what, and when and for how long?? Someone needs to listen, someone needs to help, I have explored every option! We have gone through 4 Neurologist, 2 Hem/Onc docs, 3 Psychiatrists........I mean what else do I have to do? Please God, I need you now!!
Jymani kissing Mommy Easter 2012
Thursday, March 29, 2012
Sunday, February 26, 2012
For the 1st time ever, Jymani told me what he wants to be when he grows up. I never asked, he just randomly said to me, "Mommy, I wanna be a firefighter when I grow up." Seriously, a moment I will never forget. Five and a half years ago Jymani lost his ability to walk, talk, sit, stand, crawl and eat. The progress was slow and the battle excruciating, but he eventually regained these abilities. Doctors couldn't promise me he would ever lead a "normal" life. The brain damage was irreversible. About 2 years ago Jymani started talking again in 2-3 word sentences, thanks to a lot of speech therapy. A year ago he was up to 3-4 word sentences. And now today, to tell me what he wants to be when he grows up.......man my heart is smiling!!