Time sure flies!!!

WOW.......I can't believe how much time has lapsed since my last post.  Not too much has happened beside the fact that Jymani's seizures are still not that well controlled.  His EEG was abnormal as we all knew it would be.  Instead of calling me to help me understand the report his Neurologist mailed me the report and upped and left!  Now I am stuck trying to find another Neurologist to hop on board someone who can hopefully find his/her way through the mountains of records Jymani has.  It is so frustrating and part of me wants to just move back to WI so he can go back to Milwaukee and his team of docs there.  I really love his Pediatrician, she is absolutely on board with all his care and helps refer me us to doctors that he needs to see, but these other "specialty" doctors just don't see to "get it" 100 percent or understand the full magnitude of his disorder.  Its so frustrating, I feel as if I do more talking and explaining than they do!  So the New Year for me will begin with finding new doctors to start the process over again.  We are looking for a new Neurologist and Hemo/Oncologist to step aboard and hopefully take this "Bull" by the Horns.  I am hopeful, but if something doesn't change soon a move back to WI is inevitable.  Happy Holidays to all of you!!