Jymani had his medi-port removed today! The surgery went very well and Jymani made quite the impression on his surgeon and nurses! He received an award and a courage bear with a medal!
Jymani is 8 years old. He has been fighting a rare neurological disorder, known as Opsoclonus-Myoclonus Syndrome since he was 20 months old. He is a cancer survivor and he also has been battling Epilepsy since August 2007. He was only 2 1/2 upon diagnosis. Most recently Jymani has been diagnosed with AHDH. He is truly my hero......