......alot of time has passed!!!

Wow!! It's been over a year! Well, where do I begin? Jymani is now almost 4 years old and my how he has grown! He has come such a long way and overcome many obstacles!! Since Jymani was diagnosed with OMS in 12/06 our lives have changed drastically!! We take several trips to the hospital and Jymani has many doctors overseeing his care. Not only is he fighting OMS, he has a seizure disorder, sleep apena and he was most recently diagnosed with ODD. I don't know why and if I question that on a daily basis I think I would go insane. All I do know is that Jymani is a trooper. I couldn't imagine having to go through all the tests, infusions, the poking and the prying that is done on his little body on a regular basis. I know that if I could..... I most definitely would take his place. I wish I could take his pain away....Lord knows I do!!!

Jymani was 20 months when we was diagnosed with Opsoclonus-Myoclonus Syndrome. He was admitted to Children's hospital on December 7, 2006 and had several surgeries before his second birthday.



It's amazing how much time flies when you are so preoccupied with something!! I look at this picture now and I am completely amazed!! This picture was posted almost 2 years from the date that it was taken!! It is actually from December 2006!! I can't believe it! I wish I would have known about this site then, because I really would have added more pictures and updates when when this horrible nightmare started! I am going to try my hardest to keep this updated form here on out and then my friends and family can follow his story!!! Thanks to everyone who takes time out from their day to check in on him!!