"We must overcome difficulties, rather than letting difficulties overcome us!"
Wednesday, December 10, 2008
Today Jymani had the necessary bloodwork done. We are waiting to hear what his neurologist wants to do next. We did go up on the morning dose of trileptal though. So let's hope that makes a difference!! No seizures today! HOORAY!!!!
Jymani is 8 years old. He has been fighting a rare neurological disorder, known as Opsoclonus-Myoclonus Syndrome since he was 20 months old. He is a cancer survivor and he also has been battling Epilepsy since August 2007. He was only 2 1/2 upon diagnosis. Most recently Jymani has been diagnosed with AHDH. He is truly my hero......
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