Rough Summer....

It's been hot and Jymani has had a very tough summer.  He had to leave school early because of some very unpleasant and impatient teachers, and then to have to spend most of his summer indoors because of the extreme temperatures seems so unfair.  The only time he has been able to go outside is to swim, no basketball or football (which he loves), no running around the yard doing what little boys do, every time I have to tell him he can't go outside because it's too hot, breaks my heart.  He gets it, because he is used to it, but I see how sad it makes him.  I hate that Jymani receives the short end of the stick.  The seizures are steady and horribly scary.  The heat intolerance hasn't improved at all.......in fact it seems every summer gets worse and worse. The behaviors are increasing and the ear infections are recurring.  I'm mentally, emotionally and physically exhausted.  I apologize to everyone that I haven't posted anything in a couple months.  Usually, NO news is good news, unfortunately in this instance, I just wasn't ready to report that things haven't been the greatest and Jymani's struggle is still very much uphill.   We are still fighting for answers, searching for doctors who have knowledge about OMS and the lingering effects from it.  We are at Neurologist #5 and I won't give up.  I won't stop fighting for him and with him.  Please keep my baby in your thoughts and prayers.  Be thankful for your health, because there are so many people in this world struggling to live a normal life.  Our most innocent children, who don't even know what its like to be a normal healthy child, wake up every day with the courage to push forward.  Jymani and the millions of children who battle the long list of diseases and disorders are truly my heroes......................Thank you to our followers <3