"We must overcome difficulties, rather than letting difficulties overcome us!"

Wednesday, January 21, 2009

Jymani's 4 years old now!!






As most of you know Jymani celebrated his birthday in Florida this year, thanks to the Make-A-Wish Foundation, he was able to eat breakfast with Mickey and friends on his actual birthday! And to make things extra special for him we had a birthday party for him the Saturday after we got home so he could share his special experience with friends and family! Unfortunately, after the party guests left Jymani had another seizure and now we have gone up again on the Topamax (as well as continuing the Trileptal). Jymani's neurologist is also ordering yet another EEG that will be done during another Sleep Test as Jymani is not sleeping well again and has been crying & whining more the last few months. If you notice in these pictures his cheeks are very flush and were warm to the touch, that was an indicator to me that he could possible have a seizure as when he gets too hot he seems to have seizures. Approx. 1 hour after these picture were taken he seized for about 1 minute.

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