"We must overcome difficulties, rather than letting difficulties overcome us!"

Wednesday, April 18, 2012

Its been a hard few weeks..............

Jymani has really been struggling to keep his "cool" at home and now his behaviors are coming out in school.  Yesterday, he had to leave school because he was being a danger to himself and others.  I was told that it would be "unsafe" for him to ride the bus home.  The thing that gets me is they talked to me earlier in the afternoon and told me that there was nothing they needed me to do.  I told them I could come and get him and they said he was better and he was back in class with his peers.  Really, I should have just went with my first mind and picked him up.  His school has this "Solution Room" that I think hurts more than it helps.  It is an empty concrete "jail cell".  Jymani spent most of the afternoon in there yesterday and he was a complete monster all the way home and all night.  We both ended up crying ourselves to sleep.  I know Jymani's behaviors lashing out are a sure tail sign of an OMS relapse.  I son't know what to do anymore.  The doctors have all but turned us away.  Except his pediatrician, God Bless her heart, she really shows so much interest in Jymani's case, but there is nothing else any of the specialists will do.  I know he needs treatment, but what, and when and for how long?? Someone needs to listen, someone needs to help, I have explored every option! We have gone through 4 Neurologist, 2 Hem/Onc docs, 3 Psychiatrists........I mean what else do I have to do?  Please God, I need you now!!
 Jymani kissing Mommy Easter 2012

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